Archives for category: PTSD

My neighbor Frances is 89 years young. I would estimate she is just as much, if not more of a southern spitfire as she was back in 1924 on the day she was born in farmhouse down east (as we say here in NC) in Elm City. Frances has seen me through many a life trial always without fail, inviting me into her grandma like home when I ring her buzzer. As she opens the door and says, “Please come in!” I step into to a place where my stress melts into the paneled walls and dissolves into the slip covered chairs. On a cellular level, my angst evaporates into the warmth of her home. For almost 17 years now, the simple act of my crossing my street and climbing the hill to her home has done more for me than any amount of wine or ice cream ever could. When I leave, I am better. As I turn to wave goodbye as I cross the street and she hollers “Love you” out her screen door, I realize, I am a lucky girl.

In the early years of single parenthood, Frances saved me many times over from the peril of Children’s Protective Services knocking on my door, and still does so even now as snarky teenagers rule the roost. Too many times to count, with two tiny crying kids in tow I rang her buzzer and said, “Can you please take them so I can just take a ten minute walk?” And no matter what she was doing she said, “Of course!” She would gather them inside and yell to me as I walked off, “Take an hour!” Later, I would return to find two happy kids feeling and looking every bit like the King and Queen of Siam, TV trays in front of them with a glass of milk (with a paper towel wrapped around it) and pack of Nabs on the tray, and just like that, all of us were refreshed and ready to go another day.

Frances has taught me a million life lessons, (though probably not enough yet about how to keep my mouth shut like good southern women do.) Through watching her, I have come to know the true meaning and measure of warm hospitality, love and comfort. She has taught me that a simple note written in perfect penmanship on loose-leaf paper, taped to your door with masking tape that reads, “You are a good person” can do more for a person than any amount of therapy. That spring jonquils in a styrofoam cup (reused from the Char-Grill) smell sweeter than bouquets from a florist. She has taught me that a greeting card loses nothing the second time around its used. It diminishes not in the least when it is cut in half,  in fact it actually doubles in value when you get just the front of the card with a sweetly scrawled note saying “Love you good” on the back. She has taught me that coming home from a hard day to find butter beans in a 52-year-old Revere Ware pot left on your stove heals more than Ben and Jerry could ever hope to do. And a bag of fresh strawberries tied to your doorknob in a Piggly Wiggly bag is what love smells like.

While I may mentally scoff at some of her “old timey” ways, such as with her belief that you can’t drive alone to Ohio as a single woman, or that people of other cultures are still in 2013, “foreigners,” (pronounced fur-enners) many of her ways hold fast and true in modern times. Likely, those beliefs are as much, if not more salve to the soul as they were almost 90 years ago. Comfortable ways of being that take the edges off life…church, being a good neighbor, the value of school and doing your lessons, and always welcoming a visitor into your home no matter what you were doing at the time. The importance of saying thank you, calling on sick friends to check on them and not using bad language or talking poorly about another person.

With Frances I am reminded that the things we see as little or common things really are big things if you look at them the right way. In a world where we can go to one of a million stores and buy all that we need, she remembers when there was one department store in town and how special it was to get something from there. And she is able to make me see the specialness of anything, whether it be a sewing kit, a jar filler or a Hickory Farms summer sausage. There was this kid Jason who came from a not so great home, and Frances and I both mentored him over the years when he came to do our yards. We encouraged him to graduate high school and then helped him apply to college. When Jason was finally starting college, Frances bought him (from the old southern department store Belks) a new pair of jeans and a new crisp shirt to wear on his first day of classes. As she handed him the package wrapped neatly by the store’s gift wrap department, she told him that people just feel better about themselves when they have a new outfit to start the school year.

One of the beauties of her friendship is the transfer not just of these life lessons, but the schooling in southernisms. Southernisms really are a language all their own; a genteel honeyed way of describing this oh so complicated world in an uncomplicated way of old. Terms like, “over yonder” and “way out yonder.” (For those of you who don’t know, the former is where my house is, and the latter is where friends two blocks over live.) I have learned how you totem pole the importance of “your people” in a polite roundabout way, referring to somewhat more extraneous members of extended family as, “and them” as in, “ I am going down yonder to visit Douglas and them.” Frances can, with her comfortable speak, reduce an “all tore up” situation to simple old timey golden rule, advising “bend but don’t break.” And she makes me feel especially loved every time I hear her refer to my tribe as, “Lauren and them.”

Sometimes, something politically incorrect pops out of her mouth and while I cringe a little, I know no malice is meant, just old-time, well insulated southern mindset at work. And sometimes, she’ll say something I never heard before, some magical southernism that  just hits a nerve; simplifying in a single swoop how complicated me and my internet and grad school wanderings want to make my life.

Last week, as I sat boo-hooing in front of my TV tray in her living room with a Co-Cola wrapped in a paper towel, I told her about all that was bothering me in my life, how I was tortured by loss and things gone suddenly bad and she told me I needed to give up the ghost.

“What?” I said.

“Give up the ghost,” she said, “Leave him alone, just leave him standing over yonder, Lauren…give him up.”

~~~~

I have spent a lot of time this last year dealing with really not so great change, and grieving a life that was. While there were some things I could see coming, like my son leaving for college, some things I did not. Some of these things, I would have bet all that I owned that they would have never come to pass, yet seemingly out of no where, they did.

A lot ghosts have materialized this year.

See, I’m a girl who tends to spend a lot of time wishing  that things were as they were, or even just wanting them to stay the same as they are now. A reminiscer, I spend a lot of time with my intangible tchotchke ghosts, trying to evoke memories and the good feelings that came with them. Buddhists say if we can just accept that change is inevitable, life would be easier. I suppose so, but while I might can accept that change is inevitable, I don’t have to accept that it is any less painful or that I miss things any less, especially when that change involves the sudden loss of something good and sweet. And I’d be lying if I didn’t say that sometimes, thinking I know better, I poo-poo change as a cosmic mistake and in my stubbornness, think I can will things back to how they were.

In my old age, I have also come to realize that the way my brain works is that when I see a change coming, even from way out yonder, I do tend to pre-grieve it. The end result is that a ghost never materializes. Pre-grieving, (while annoying the hell out of my friends and therapist) seems to be little ghost prevention on my part. But, when I am blindsided by something…when faced with a sudden unexpected change like cancer or the loss of a relationship, the ghost becomes a constant traveling companion. I become handcuffed to the ghost and to the notion that I can breathe life into it or recreate it, never even considering that the ghost wasn’t as good as I remember.

My memory skews, remembering only the good times rather than parts of it which haunt me. Experts tell us that when we grieve, be it people, relationships, or times in our lives, we tend to be a tad unrealistic about the memory; we tend to romanticize and put the person or experience on a pedestal. It follows that we get kinda sweet on the ghost, in a codependent kind of way. The ghost becomes an amiable companion, like one of those less than sinister vapory fellows that appears in your Doom Buggy at the end of the Haunted Mansion ride at Disney. These are the kinds of ghosts who evoke again and again a narcotic hit of the endorphins and oxytocin of days gone by; hard-wired to good, happy feelings.  So warm and fuzzy, that we overlook that we are riding in a Doom Buggy.

~~~~

As I kvetched yet again to a friend about the loss of a relationship, she, as all great girlfriends will do, offered wine to go with my whine. She then encouraged me to list the ten worst things about the guy. I started out slow and then gained momentum; one after another, BAM BAM BAM until I was up to like #29 and she and I were reduced to fits of giggles. “Kick his ass to the curb, Lauren,” she said.

I have found myself repeating these lists like a mantra as I am awakened by all my ghosts in the night, counting on my fingers and toes those bad things about each one, chasing away the vapory notion that it was all good.

See, when we look back on a relationship, a marriage, a time when our kids were little or our life before cancer, we see only the good and find ourselves longing for those days. We have romantic little candlelit dinners with our ghosts and sweet forays with them in the night. We remain loyal to their vision, and may even try to recreate them, hoping to conjure them into reality. We forget that the ghost chewed with its mouth open, or had tantrums, or took endlessly from us without giving back, or vaporized when you most needed a friend. We forget that we had bills and fights, because the ghost is perfect. The ghost is comfortable and familiar alright but, as a very real therapist once warned me, even shit is warm and familiar.

Ghosts encourage us to try to re-mine the gold and harvest a replay of the feelings where we once found a vein. But the vein is exhausted. And ghosts are exhausting; they keep us handcuffed from the future. And here is the thing; when we are looking back at what was, we can’t look forward. Sometimes, you must mine deeper.

And that is where I am now.

~~~~

I had great plans for 2013; I cheekily called it The Year of Lauren back in January. It was to be the year I was gonna get me back, get life on the right track again and get things done! I envisioned greater levels of fitness and balance and restoring joy with all things in my life. But last week, now just shy of the turn in the year it occurred to me that I’m not off to such a good start, in fact not a start at all. None of the things I so hopefully imagined ahead as I sat on my couch watching the Rose Parade have come to fruition. In fact, it seems even more was stripped from me than restored.

I have had recurrent dreams lately about trying to go to places I want to see, yet when I get up to go, my pants are covered with cockleburs. In the dream, I can’t move forward until I pull them off one by one. Woe, I tell you, WOE. In one of the dreams, I wanted to enter Muir Woods to see the redwoods, and the park ranger told me the burrs would contaminate the forest if I brought them in.

It occurred to me that maybe the Year of Lauren (in God’s plan at least) had more to do with what I needed to get rid of than what I needed to gain and make happen. What I needed to shed, before I can grow. What needs not to contaminate my strong future. And that perhaps maybe, just maybe, I needed to listen to God and quit being so darn stubborn and bossy and a whineybutt about how I thought it was gonna be.

We must leave our old cockleburry laden pants behind, and put on a new crisp shirt and new pair of jeans to start our new life. We must walk unencumbered, forward  to find new veins to mine, way out yonder into the dark. And leave the ghost and them, behind.

“Give up the ghost,” Frances says.

“Kick his ass to the curb,” a girlfriend cheers.

“Uncuff him,” I command, “And eat more butter beans.”

Sometimes God’s blessings are not in what He gives, but in what He takes away.  Stop trying to pick up what God told you to put down.”

~random feelgood facebook post~

Halloween is a coming and it’s time for ghosts and goblins and all the spooky stuff that makes you quiver and quake! (I mean of course beyond the onslaught of bone chilling pink neon of October reminding you that A) you had cancer and B) there is still not a cure, but I digress.) I’m a pumpkin carving, costume making girl myself; a girl not too keen on hard-core horror shenaniganry. But it is Halloween and I realize some people enjoy that edgy fear that is brought on by terror and fear so, if you are NOT one of those thrill seeking people, this blog is not for you. And for you adrenaline junkies out there who crave a little foray into dark crevices of a psychological thriller, I won’t disappoint.

Follow me to a place where anxiety whips you around the craggy corners and “What Ifs” taunt you as they dangle from the trees like sinister Spanish moss come alive, waiting to grab you with its gnarly fingers. Let’s go to a place where cesspools of bubbling yuck abound, spewing slime on you as they percolate endlessly. In this little House O’ Horror, you’ll find that the unexpectedness of the path is the worse part, cause one second you are on the Pleasantville train all safe and buckled in, and the next you are hanging out of the window as it careens over a cliff and you holding on by your fingertips. Ghosts from the past whisper warnings of death, wrapping around you like a filmy, wet covering of doom you can’t wipe away and skeletons jangle their bones in a rhythm that is hauntingly familiar. You run, but you cannot hide.

You my dear, have entered the haunted hallows of my neurotic little mind. You timidly tread on a path worn by years of the anxious wanderings of the crazy woman in the attic and her vigilant pacing back and forth as she scans the horizon for what is to come. Madness drives her repeatedly back and forth back and forth as she screams her banshee laughter and cackles, “It’s coming!”

Spoiler alert.

It occurs to me that I am a little neurotic. I know right? Big freaking surprise to those of you who have had the honor of standing next to me during what I personally perceived to be a high alert situation. Shocking to those who have felt the anxiety shed off of me like a constant molt of yuck and who  have heard me endlessly repeat things, as if  that could contain the worms in the can. Truth is, I come from a long line of anxious people, my momma and daddy were both Nervous Nellies; and I seem to have gotten a double whammy of the worrywart gene on my catastrophic death spiraling helix. Add to that mix a healthy dose of cancer trauma, and yep, you’ve got yourself quite a psychological horror story.

Quick psychology lesson. DSM-IV will tell you that the trait known as Anxiety shows up in a host of outfits; Obsessive Compulsive Disorder, Panic Attacks and Phobias are some. Post Traumatic Stress Disorder (PTSD) and Social Anxiety are also members of the family and Anxiety, not being chintzy can also give people a combo platter of several types. Me, I have always been a garden variety catchall Generalized Anxiety kinda girl, little bit of this and a little bit of dat; nothing special about me. 

In an oversimplified version, Anxiety is controlled by a little almond-shaped thing in our brain called the amygdala.(ah mig dah lah)Powerful little nut that amygdala is; a little panic button per se. When a normal person sees something that feels worrisome  like say a snake, that little almond is in charge of sounding the warning (or “Uh-Oh” response as Reid Wilson-anxiety guru calls it.) The “Uh-Oh” is the signal that sets off the adrenal glands, makes us fire cortisol, and engages all the other chemical responses to act; responses which are generally helpful in a normal threat situation. Note the word “normal.” 

When someone like me has anxiety, a whole, whole lotta nebulous stuff has the ability to set off that “Uh-Oh” response, things that likely the average bear never even notices as she goes about her day. Experiencing a trauma, like say CANCER introduces yet a multitude of new, invisible to the naked eye of a normal non traumatized person items to set off the panicked feelings. When these triggers, the things that poke at the amygdala and shout “DO SOMETHING!” are related to past trauma, we professionals call the response hypervigilence and PTSD. I think its fair to say that most of us who have worn the pink dress have a wee bit of PTSD after almost dying and all. And its fair to say that a lot of the cancer related triggers seem to make absolutely no sense to us or our family and friends, until of course, you backtrack to the fall of the first dominoes in the series. Phobias are a little different in that they really don’t have an identifiable precursor, but triggers generally have trauma as the culprit.

Admittedly I had this cute, overworked lil almond of an amygdala long before cancer; but now I seemingly have a whole bag o’ nuts. Cancer and all the wonderful experiences that go with it, simply makes us scared of things that the normal chick probably never even notices, like illness, wearing hats or say the smell of band aids, sharpies or skin burning. Sometimes, we are scratching our now hair covered heads going, “What the hell? Why am I wigging out at a baseball hat?”

So add trauma to an already anxious girl, and my amygdala came out of cancer in “Uh-Oh” overdrive with a hair-trigger to boot. To manage it, I have decidedly taken an offensive stance to heading the “Uh-Ohs” off at the pass. Scanning the horizon as good PTSD patients do, I remain ever watchful on the widow’s walk of my mind. Then when I spot something on the horizon (whether real or conjured in my banshee imagination) I rapidly assess the “What If’s” to proactively diffuse it. I generate a plan a,b,c and d if  “What If” happens. This serves, in my crazy little mind at least to stem the tide of adrenalin when it does occur by providing it with premade, neat little controlled channels in which to flow like levees in a hurricane.

Cancer made me start considering thinks I never thought before; new and improved“What if’s” materialized because in part, the notion was reinforced that small things can indeed rapidly become BIG things. Cancer also blindsided me, and made me feel I missed something, its cackle of BwaaHaHa! resonates to this day, echoing the notion that had I been on a more watchful guard, it wouldn’t have gotten to me. 

Cancer made me crazier. Cause I now spend likely an unhealthy amount of my life in, “What If?” It is hard for me to imagine that a lump on my thigh could possibly be cellulite and not cancer. 

I like to think, being the positive spinmeister that I am, that I spend so much time in “What If” to innoculate my brain with controlled little doses of adrenalin, so when real things occur they are not as overwhelming. (Sounds good in theory doesn’t it?) My dad always says that worry is money spent on a debt not yet owed, and boy debt scares me; I have gone bankrupt emotionally at times with worry. Ironically in the face of this habit, I will swear to you I am an optimist, because where some might see a pessimistic doomsday Eeyore I see a good Boy Scout. Albeit a good Boy Scout who annoys the hell out of others with endless preparedness drills. 

Blindsides, of which I have had many over the years, make my free-floating anxiety worse and have put my amygdala on a constant state of heightened alert. When I get blindsided, I’m useless for days; I get paralyzed by the flood of adrenalin, like a deer in the headlights, I can’t move and think.  See, I can handle a “What do we do now?” as long as “now” is played out in my head long before the event actually takes place. But when I am in blindsided like I was with cancer, I spend my time grieving in my angst and anger over my failure to see it coming. In the end, I am left not trusting myself, not knowing what is solid and true, feeling like the worst Boy Scout on the face of the earth. Blindsides have made me suspicious that the status is never ever really quo, and amplified my global need to take the pulse of everything, over and over cause certainly I missed something; some sign of sickness in the relationship or my body.

I am a shoot my ducks down as soon as they pop up girl, but now I have taken it one further, aiming my gun at the place I suspect they will pop up and sometimes even shooting  rounds at the empty space. I am a pre griever, a pre worrier, a preparer for the worst. I exhaust my friends, my dad, my kids and Grandmother Willow. And me. Sigh. I blame cancer.

Cancer did a lot of bad things to me, it took a chunk of my body, it made me have to get poisoned on a regular basis, it burned my skin, it financially devastated me and it stole a few years of my life by making me too sick to do anything. But one of the worst things it did to me was reinforce the notion that a limp in the dog could mean he will die tomorrow, that someone not calling me means they ending their relationship, that a fever could mean meningitis, and that I could die from a dog bite. It made me afraid of normal life events, like checkups and even getting a cold and made me live in “What if?” A friend admonished me the other day when I talked yet again, about Scout dying. “Jesus Lauren,” he said with the beleaguered exhaustion well-known to my friends, “You have had that dog in pine box at least five times in the last three years.” And he’s right, and I have had me there too.

Cancer made me a bit of a drama queen I guess.

Cancer leftovers suck.  They are cold and even yuckier when reheated. And the trouble is you never know when your mind, like the frugal,well-meaning grandma is gonna pull the foil off an old unidentifiable clump covered with mold and say, “Oh yes, this will be yummy reheated.” Your mind smells it and says, “Uh-Oh.”  Hell, your mind just hears the crinkle of the foil, or the refrigerator door open and you are off to the adrenalin races.

And you know what? Cancer stocks our fridges to the gills with that shit.

I talk a lot in this blog about the PTSD that comes with cancer. The smells and feelings and visual things our minds and muscles secretly recorded unbeknownst to us, and meticulously covered with foil and stuck in the freezer drawer. Vapory, ghostly wisps that covertly reheat later to poke and prod at our sweet lil’ amygdala, sometimes without us knowing it until it boils over. Double, double toil and trouble for sure. Yeah, I am a drama queen alright, but damn it, I earned it.

~ Meandering~

David Sedaris does this hilarious piece about a purchasing a genuine human skeleton as a gift for his artist partner, Hugh. He suspected Hugh would take the skeleton his art studio but Hugh instead decided he wanted to keep it in the house, hanging it in their bedroom. David writes that every time he sees it, he hears it whispering to him, “You will die.” In fact, he can hear it whispering from the other rooms in the house, pestering him as he works….”You will die.”

~Meandering~

A few weeks ago I was talking to a friend on the phone. He had a head cold and as we talked, I could feel my amygdala kicking in and I got all squirmy. I got kinda freaky in that weird way that your body feels fear, but you don’t know why. I wanted to hang up quickly and I did.

It has started to occur to me that I get a little too hinky about getting sick, about being around people who are sick or by being exposed to things that I think will make me sick. While the germaphobe thing was likely always there for me, it was dialed up a thousand notches by cancer. Illness, and all the  smells and feels of it are all too familiar and I spend a lot of time and energy avoiding it. The potential of catching something, of getting sick is the first domino; it tips all the rest of the triggers and let me tell you, it’s Guinness Book qualifying long line of them after cancer.

Getting sick scares me now because my mind travels down that well-worn Path O’ Terror to the place where small things can morph in a millisecond into big things. It is hard for me to believe now that strep throat won’t kill me by attacking my heart. I tend to pay way too much attention to small things that are wrong, a tiny red bite that may be a harbinger for lyme disease or even the interplay of my stress levels causing cancer.  Because I realize how what I wrongly assessed as a small thing in the past, was in fact a big thing and it blindsided me.

So now it’s all BIG. Cancer makes it hard for small things to stay small ever again, working like a trick mirror on the haunted trail, distorting…distorting and magnifying. “Uh-oh” comes with the slightest sniffle, with the smallest pea of a nodule in your thigh and with the slightest murmur from a lymph node.

When you are trutzing around with a grand total of about fifteen white blood cells circulating through your system, you suddenly realize a small thing like a cold can take you out. A fever can put you in the hospital, where you are susceptible to even more illness, and funny as the notion sounds, being sick delays chemo treatments, and that too can kill you. And when you get sick now those fears, silently recorded, get played.

Cold’s whisper, “You will die, I will kill you.” And your amygdala does not forget that lesson. Sneezes by the guy behind you line at the grocery store scare the shit out of you, even after five years.

I have had this little heart flutter thing of late. While I got checked and was told it was normal, but it still has a stranglehold on me when it happens. It feels like when Herceptin almost killed me, like the day 38 treatments in, when my heart almost stopped. One minute I said to the chemo nurse, “Hey Marci, listen to this,” and the next minute there was panic in the chemo lounge as my line was pulled and I was whisked to cardiac care.

Flutters rattle the skeleton and he whispers, “You could die from this.”

By week 32 of chemo you feel like you have had the flu for well, 32 weeks. Feeling sick, fatigued and vomity, swallowing oodles of pills and feeling dizzy all becomes a constant. When you look in the mirror, a sickly ghostly being looks back at you whispering, “You could die from this.” And suddenly, all the things associated with being sick, become cattle prods to the amygdala.

Now, just feeling sick scares the hell out of me. It rips the foil off the old stuff from the back of the fridge and makes me taste it again as it shoves it down my throat. The few times I have had colds or illness since cancer I am miserable, not a whiny sniffling way but in that edgy free-floating fear as you walk through a haunted house kinda way. Like a pink-eyed zombie, any illness has the ability to grab me and takes me back to the visceral depths of the places I hoped never to visit again by mimicking what I felt all those months. The muscle memory kicks in, the hard wiring fires, the tape recorder hits play and you hear, “You will die.” And even if in your mind you know better, stopping adrenalin is like stopping a train; no can do.

Scan the horizon I do, for coughing ducks.

~~~~

The good catholic girl in me would like to believe (and does) that the avoidance is not so much of death, as much as it is avoidance of the ghosts of cancer; of the tastes and smells and fear and fatigue and feelings that whisper with their haunting familiarity, “You have cancer. You will die.” I will do anything to prevent those bones from rattling. I will do anything to manage ahead of time that of which I am most fearful. An acrobatic and exhausting avoidance of the haunted place where I once lived and almost died. Avoidance of anything that makes me, my muscles and my sweet little amygdala hear, “Cancer.” Anything… to avoid fear. A fellow blogger coined the phrase, “My fear kicks my other fears ass.”  Boy ain’t that the truth?

Skeletons in my closet indeed.  Boo.

 

“You got serious thrill issues, dude”

                                                                          Crush–Finding Nemo

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I’ve been avoidant. 

Okay, maybe a little lazy with a capital Z mixed in as well. 

A little unfocused. Perhaps a little scattered and overextended.

But really.

Mostly avoidant.

Despite the urging and friendly Yoo-Hoo’s of others to come back out to play, I have dug my heels in and looked away. 

In fact, I have a confession to make. Please forgive me y’all. I’ve been avoidant of reading the other bloggesses blogs as well.

Truth is, way back yonder in December I promised I’d be back soon. And “soon” by any stretch of the definition well, “soon” has done come and gone. And I still sit here, avoidant.

At first I thought I just needed a little break. I really loved writing my lil blog every week, and kinda got to where it was a part of me. Initially, it felt good to empty out the trash can, and to spill out the rummage left behind in my head by cancer. I felt humbly, that I had figured out why I was still here. At first.

My little über analyzing brain has tried and tried to figure out what’s up with the delay of my return to the blogosphere. After a year of writing about the ick and nonsense and cancer drama, I can only describe to you more what I didn’t feel than what I did.

What I didn’t feel anymore was the gratification of the purge; I didn’t feel the expected satisfaction of succinctly tying up so many loose ends and setting them free. At the end of it, I no longer felt the organized glee of putting them all into neatly categorized drawers and boxes and sliding the drawers shut.

No, I didn’t feel the satisfaction of the emptied attic. It left me with nothing to do with my hands. And really, what’s the point of being the crazy old woman in the attic if there is no fodder, if there are no chests to open and frantically grab and wildly throw the contents about while screaming about cancer? 

The empty space, albeit peaceful, haunted me more some days than a head chock full of trauma bits.

I mean, who was I if I wasn’t the girl with cancer? What should I do with a mind born to dissect and analyze everything to death when there was thankfully, no apparent death to analyze? 

Perhaps (I entertained but for only a moment) I am a tad histrionic after all, thriving on drama and needing crisis to feel like I was alive, forever needing something to do with my racing mind and hands. Perhaps it’s why the stillness, which I did not really resent, felt odd.

What I felt was nothing. Not good or bad, not relief or angst. Nothing. A void. An absence of something that had taken up a whole lot of space. Emptiness where the cancer was, a big empty attic previously taken up by the cancer.

And a reluctance to refill the room with those thoughts again.

Early on in my cancer diagnosis, I was sitting in Grandmother Willow’s office. This was shortly after the dirty little secret of breast cancer was whispered in my ear; that the trick is not it getting rid of it the first time, but in keeping it away. Grandmother Willow was trying to stem my rapidly racing thoughts as they made loop after loop, trying to assure me that one day this cancer would all seem an afterthought.

Because I can sometimes be a Little Miss Know It All, I often tend to call bullshit on theories that don’t match up with my picture of the world, and that day was no different. I remember thinking maybe she was the crazy old lady in the attic because I could see nothing but a life from here on in with the grim reaper as my constant traveling companion, forever bound like members of a chain gang with his endless whisper distracting me for eternity.

I distinctly remember her telling me about woman who recently came to see her who, after a whole first session of spilling her current emotional history said, “And oh yeah, and I had breast cancer ten years ago.” “Oh yeah,” like she had forgotten about it. “Oh yeah,” like it was an afterthought.

“Bullshit,” I thought.

Sitting bald and frightened on her couch, it seemed inconceivable that cancer would one day take up so little room in my life; that it would become such a non entity in my identity. That in the game board of Lauren’s life, cancer would become such a non player in my current emotions on any given future day.

Yet, this is how I have felt these last months. I have felt the absence of cancer. 

After years of thinking about nothing but cancer, I have somehow managed to get to where it is not part of the complexion of my being. One day last week, a neighbor stopped to tell me she had gotten her port out that morning. I felt this blankness when she said it, not lack of empathy, but more a situation where I was unable to summon the empathy because I had forgotten how it felt to be in her shoes. I knew she must feel relief, but I couldn’t feel the taste of it in my mouth anymore. When I started to try to remember what I had blogged about ports, I couldn’t even remember what I had written. All I could remember was how hilarious it was that Wendy had made hers into a daisy.

When I went back to read that blog, I swear to you,  it was as if someone else had written it. Sometimes this happens with my mom; I can’t remember what she looked like until I look at pictures, and then I am surprised at features in her face that I forgot.

I was detached from cancer. Detached from the chain gang.

Years ago, big surprise, I had to take Concerta for my ADD. With that drug, the thought of food and hunger vanished. I’m not saying I wasn’t hungry or my appetite was curbed, I am saying that the thought of food no longer crossed my mind. I’d be sitting there feeling faint and go, “Oh, yeah, I haven’t eaten in two days.” This little pill took away the emotion and rituals and grooves in my brain that were attached to food and eating; it eliminated the craving and the timing and desire to indulge in this so familiar and daily ritual.

This little blog did the same with cancer. I don’t indulge in cancer much these days. But, it’s not healthy to not need food, nor is healthy to avoid part of your being.

I remember reading how Lance was in an doctor’s office finding out he was just covered with cancer. It seemed insurmountable, yet a few days later after he talked to doctor after doctor about what each intended to do with each and every metastasis he proclaimed, “We had talked this thing down to size.”

Blog by blog, a bite of the proverbial elephant (or grim reaper) at a time, I too had talked the memories and trauma, the cancer down to size.

While the bell can never be un-rung, somehow, somehow….swirling my pen around in the well un-cast the dye. Like a magnet, my pen pulled the dye cast long ago from the water, bringing it from pink to very, very pale, almost indiscernible pink.

Perhaps I lived my way into (at least some of) the answers.

Perhaps I am just reluctant, not avoidant. Perhaps I am detached; not sure that I want to re-attach, or how to re-attach without it filling the room up again.

Perhaps, I have just moved seamlessly, as we do with grief, into acceptance.

Perhaps, I have indeed outlived it.

So in these last months, my life has been filled with all the stuff of teenagers. Colleges visits, college apps, obsessing about the right high school and college choices, proms and dances, driving lessons, graduation preparations for two and undergoing some good old-fashioned teenaged drama teaching me I better grow some thick skin real fast. (Suddenly, I have become a whole lot less smart and a whole lot less funny.) My pop survived another wicked pneumonia, and Scout is still the best dog ever made at the dog factory. Through all of this, I have worn some very good friends down with my new looping obsession; my anticipatory grief that life is gonna change real soon as the kids and people and dogs I love fly away. But in all this, we are busy, busy, busy here at the ranch distracted by life not death; indeed life is moving forward at warp speed.

And oh yeah, six years ago I had cancer.

 

 

I’m back.

 A little at a time, so as not to fill the attic,

but I’m back. 

xoxo

Lauren

‘Twas the night before Christmas and all through the house,
This blogger was tired and so was her mouse!
The blogs of the year had been posted each week,
With the goal that 52 would end as the peak.

Yes, a goal had been hung, like a stocking with care,
A blog a week for a year, and she was quite nearly there!
“I’ll continue on,” she thought; but while all snug in her bed,
Visions of junior mints and a blog break danced in head!

Last January she came, dressed in pink from her head to her foot,
Her mind was from her cancer was all tarnished with soot!
When she started to write, old thoughts served to remind,
Of the icky days of old, but Oh! The gifts she would find!

When out of the blogosphere there arose such a clatter,
It seemed what she said, to lots made the matter!
So onto her laptop each week she flew open the sash,
And her WordPress publish button, she nervously mashed.

She said not a word, but went straight to her work,
Writing about PTSD, grief (and some really big jerks!)
For after five years, she had a head full of ideas and hair,
And the scars and the lessons of cancer to share. 

The keys of the keyboard; Oh! how they danced!
As the emotions of the big C trampled and pranced!
She wrote and she wrote of feelings both wise and quite fearful,
And a few posts about her wee ones, which made her quite tearful!

This new little blogger so lively and quick,
Knew in a moment, she was no longer sick!
Finding mirrors and perspectives alike in the blogosphere,
And humor, frustrations and commonly held fears.

And then in a twinkling she saw on her screen,
The comments of the bloggesses so sweet and serene.
New friends o’er the world were nestled all snug in their beds,
While Blue Geckos and Underbellies danced in their heads!

She made more friends than imagined (and all she quite fancies,)
Like Wendy, Katie, Marie and both of the Nancys.
Philippa, and Beth, and Brenda and again,
We mustn’t forget Jan, Terri, AnneMarie and Renn!

They giggled about chemo and “twang arm” and more,
And shared the experience of fear to your core.
They talked about thigh cancer and things lost and found,
And they shared cancerversarys, and how klunkers abound!

They shared their frustrations at finding a cure,
And found peace in numbers, of that I am sure!
They found new friends in the most extraordinary of places,
Like Yangon and Ireland, and lots with no voices or faces!

They talked about bedazzled bald heads and daisy dressed ports,
and they found in each other, a worldwide cohort!
They held virtual hands as “Captain Anxiety” danced in their heads,
And celebrated after those quite harrowing rechecks, the finding of NED!

But after working her goal of a year full of blogs,
She needed a break to refresh, from unleashing the clogs.
Yes her little chemo brain-brain needed a rest,
And she needed to cuddle her wee ones, in their little Who-nest.

And what to her wondering eyes should appear,
As she hit publish on this Christmas morning so dear?
As she glanced out from her laptop, while wishing for snow,
She looked back and saw, ”Hurray! It’s your 52nd blog!” in the glow!

More rapid than Komen, all year the bloggers they’d came,
And she knew in her heart they’d continue the same!
So she rode out of sight shouting, ”Carry on Y’all,
And blog away, blog away, blog away all!”

“On Philippa and Wendy, Annemarie and Renn
On Katie and Nancy, Beth, Terri and then,
Do you recall, the most famous blogger of all?
Marie the red-headed blogger; she led the blog ball!

For a month (maybe two) she’ll be gone but return,
With new blogs on life’s other travails, and fresh ideas to burn!
But for now laying a finger on her laptop to close,
A break from her blog, was the path that she chose.

As she hit “publish” today with a quiet Christmas morn’ tap,
She found her goal in her stocking, and settled for a long winter’s nap.
And she exclaimed with such love as she drove out of sight,
“Happy Christmas to y’all, and to all a good-night!”

 

Back soon,
xoxo 
Lauren

When all the noise is gone there is only God.  ~Author Unknown

 

While the Who’s down in Who-ville
Loved preparing for Christmas a lot,
The Grinch it seems, most certainly did not!
He did not like their holiday festivities,
Not one bit, he did not!

December 12 has some seriously
Bad mojo for this Who you must see,
For when I rip November from the calendar,
It plum steals my glee!

 It slides into town
with its trumpet sounding and squealing,
A nasty wasty old Grinch,
Just slinking and stealing
All of the infinite joy
of my holiday season!

I’ve puzzled and puzzled about why this is so,
(And I come to the conclusion
That I’ll never know.)
It comes, shouting and screeching,
“Twelve! Twelve! Twelve! Twelve!
Stop what you’re doing
(beseeching, beseeching)
Boo Hoo to your Who-who-ing!”

December 12 has all the tender sweetness
Of a seasick crocodile.
Yes December 12, has been you see for a while,
has been downright vile!
For us Who’s in Who-ville, 
(Right where we Whos be)
It’s been super duper awful, you see!
 
The sleigh full
of unfortunate December the twelves
(Despite the all of the efforts of Santa Claus’ elves,)
Started on a day far far away,
In 2001; on a cold winter’s day.

Now part of the problem was you will see,
Was that we Who’s down in Who-ville love our holiday glee.
We, yes we Who’s liked Christmas alot,
But that Grinch, well the Grinch
Most certainly did not!

He crept through our Who-house feeling oh-so contrite, 
As he made his way through
in the still of the night,
(Stuffing my joy in his bag
As he slithered and swagged,)
He did, he did! And then pulled it up tight!

Yes! Just seven days after I got punked,
From that nasty old rotten, spotted green skunk,
When I was given hallmark greeting betraying
His true and his hidden green leopard funk! 
‘Twas a sweet anniversary card
Promising undying love; yes I sighed,
Yet on December 12,
I awoke to find in that
The undying love
Had in fact died!
My mouth hanging open
For a minute or two,
I found a note saying,
“Pooh Pooh to the Who’s!”
Leaving crumbs too small
For my little Who-mouses,
The Grinch took my life in his sack,
And left for new spouses!

It seems lore is true,
The Grinch hated the NOISE! NOISE! NOISE! NOISE!
Of we wee Who’s down in Who-ville
And all of our joys!
And too the Grinch it seemed, 
(We all know a ton)
Hate hated the fun of the season!
(No one knew the reason)
No one, nope no one.

 Yep, December 12 was a mean one that year,
Starting a trend
Of instilling fear
Cuddly as a cactus,
(And we now we know from the years)
We were just getting practice!

 Twelve months later, exactly I’ll say,
I was in my kitchen with the kiddos
Forsaking the day.
Putting my good-vibe-voodoo
On December the twelve
Doing our holiday baking,
With my little Who-elves.
The Grinch sleeping late,
Why, he was just awaking!
(Perhaps sniffed the Grinch
My holiday baking?)

‘Twas a warm December 12 afternoon,
And I, well I said, like a hap-happy loon
“It’s too warm for a sled or for green grinchy snow,”
(Cause he needs snow to slide into town we all know)
A day mild and fair, I threw open the sashes
Said “Stay out you old grinch! Let in the fresh air!”

Sirens heralded the Grinch coming,
In his stolen sled chase,
“Oh My!” I thought summing,
“He will show his green face!”

 I ignored those horns thinking,
 “How could it be so?
For really you see,
His sled couldn’t possibly go!
Coming? Not he, could it be?
Oh palease; there’s no snow!”

But the Grinch crashed his stolen sled,
(with lights blue and lights red)
On foot he leapt o’er our fence
(And into my yard with police chasing, guns drawn)
That old louse!
As looked with great dread at the path that he cut,
and I screamed NO! and slammed the door shut,
That Grinch slunk up my deck steps,
I said to the wee-Who’s “Lay down!” as he crept!

Then that nasty old Grinch
Hid in our Who-ville for an hour or so,
(Not in my chimney, but on the down lo.)
Though we all ended up safe,
(both my Who-son and Who-waif.)
And although the police came and showed that old Grinch who’s boss
He succeeding in making our cookies taste like Toadstool sandwiches,
(With arsenic sauce!)

 Charming as an eel old December 12 was that year!
The hex, you are seeing, it becomes oh so clear!

 The December 12 Grinch slid into town,
Like clockwork he was,
Making not yet a sound!
He came two years aft to the day
But this time by phone the bad tidings
He chose stage for his play!
When that nasty wasty skunk of a doctor
Caused a nauseous super ‘naus
By announcing that unfortunately I had cancer
And well, there would be no Santa Claus!
Now I can’t fault the doctor
(He was just made to be Grinchy)
Horns strapped to his head,
Why, he was forced to be winchy!
Like little Max, he surely didn’t choose,
To be tethered to the gigantic, Sleigh O’Bad News! 

You nauseate me, December 12, you are a greasy black peel!
So often now, it seems quite surreal!

 Last year the December 12 Grinch,
Brought nary a pinch.
So smart and so slick,
He smiled at this little Cindy-Lou Who,
With a great Grinchy trick!
No termites in that smile did see when I spied and I spied,
(I didn’t I think to ask why Santy Claus Why?)

I awoke last year on the twelfth to see,
The dawn of my five-year cancerversary!
December 12 patted my head assuringly as I cooed like a dove,
Seeing my tree not lit on one side and promising to fix it above!
On the best date of my life
(to a theater grand)
With stars on the ceiling and cherubs with fife
And jolly old soul playing the Wurlitzer organ
 In this magical land!

My whole tree seemed lit up,
As I sat content with my milk duds and my Grinch given cup!
Watching White Christmas;
Gosh! My heart was filled up!

Later we went to the tackiest light display ever seen;
(My ultimate happy place)
Yes! This lil Cindy-Lou Who went to bed with no green, 
And a smile on her face.
Yes! Little Cindy Lou Who sighed a satisfied sigh.
(It seemed you might see, she had found the right guy!)
Candy cane in her little Cindy-Lou Who-hand,
It seemed there was finally no Grinch in the land!
Dreaming her sweet Who-dreams with nary a care,
It seemed that the Grinch had decided to spare
This me-Who
(and too)
my little Who’s Who’s!

But alas! Cindy Lou eventually awoke to the clatter,
Of learning it was just a good date on a bad date,
(And that lots be the matter!)
“Boo-Hoo! Boo-Hoo!”
Cried Cindy-Lou Who,
“The Grinch took my joy up yonder to Mount Crumpit
(Of that he was clear,)
And yes she is still waiting for the Grinch to fix up there,
And bring it back here!”

Yes the December 12 Grinch is one rotten tomato,
With ears full of vegetable gunk,
(And not sweet potatoes!)

Today on this eve of this eely December twelve
I glare at the calendar 
(Sitting by my Elf on the shelve.)
Cause surely again the Grinch getting ready to finish his goal
And I already can detect, the garlic in his soul.
He’ll slink down my chimney as I snooze, asnooze snooze.
And on the stink of his breath, carry difficult news.

A friend’s biopsy will come,
As the Grinch makes his way,
And I can tell you that over that old bum,
I’d take the seasick crocodile
Any old day! 

December 12, December 12; it remains so very true,
Especially for these three little wee-Who Whos,
You are indeed a nasty wasty skunk,
And “The three words that best describe you
Are as follows and I quote,
Stink, stank, stunk!”

 You’re a foul one December 12,
You do indeed have garlic in your soul,
And I wouldn’t touch you with even a nine… no eleven
No! A gazillionth and a half-foot pole!

You’re a rotter, December 12, you are a sinful sot!
Trying to steal my Christmases
I dislike you I do, and that a whole lot!

 But wait! Do you hear what I hear?
It’s coming near!
Do you hear the bells ringing?
Rising over the snow?
It sounds like wee Who-folk singing!
A warm blanket-like glow,
And it’s starting to grow!
A tinkling sweet sound
So sweet and so clear.
Come on everyone,
Put a hand to your ear! 

“Fahoo Forays, Dahoo Dorays
Fahoo Forays, Dahoo Dorays
Welcome Christmas, Christmas Day”

“Hurray! Hurray!
Hurray,” I say!

Because my dear Who-friends,
(I am just now Who-summing,)
That the best part of the Grinch
Is that he tries to stop Christmas from coming!
Each year around twelve twelve, we-Who’s feel his pinch!
But every year Christmas still comes in spite of the Grinch!
It is still in our grasp,
(Despite our Who- gasps)
Yes Christmas keeps a coming,
As long as we little Whos keep, 
This little Fahoo tune humming! 

Every year it turns out okay,
(No! More than okay,)
When we see that the Grinch
Cannot steal Christmas Day!
The story without fail we wee-Whos realizes,
Yes we see just as soon as our hearts grow three sizes!
The lesson itself always comes to full circle,
Not despite, but because of what happened
(I know, what a quirkle!)

Every year a sled full of blessings
Slides into Who-ville,
And we pull our wee Whos close; all warm, cozy and still.
Andwe find that the sled is packed full of assorted Who-lessons!

Listen close now you little Who-Lasses and lads,
It’s not about  iphones, itouches, or even ipads,
It’s only about the What we Who-haves,
(And most certainly NOT about what we Who-hads.)

It’s not about the toys and pantookas and wuzzles
But indeed about giggling
At how that old Grinch puzzles,
When despite all of the havoc he tried so hard to bring,
We still have within, what makes our hearts sing. 

Every year, December 12 comes on, sure as snow,
Yet I find tidings of good,
(Despite all that I know)
That mean old Grinchy Grinch
Squeezes my hand with a hard pinch
 Yet I softly pat his green  hand,
Cause it’s well in my land!

He reminds me of the true Christmas meaning,
Not despite his antics, but because of his antics
(That’s the lesson I’m gleaning!) 

Every year, my Grinch of December twelve comes round to remind,
Both my little Who’s here in Who-ville,
(Who are both very kind)
And this little Cindy-Lou Who
(Who likes Christmas a lot)
That Christmas comes, yes it does,
No matter what!

Because Christmas, most certainly was never about,
What was taken, or what we Whos find we’re without,
Christmas remains as that old Grinch was so wise to see,
Just so long, as we have we.

When you clasp the tiny warm Who-hands,
Of the tiny Who’s that you love,
And have a little faith in your God above,
Christmas is ALWAYS merry! VERY!
(and chock full of love!) 

December 12 didn’t stop Christmas from coming;
Cause in our Who-noggins that sweet truth
Of God’s love keeps a Who-drumming!
It came! It came just the same!
And yes my Who-friends,
That truth will always remain. 

And in this crazy little Who-life of mine,
(Which by the way is so dandy and fine)
I say, “Welcome Christmas bring your cheer!”
And I stand hand in hand
With those Who-folk I hold dear.
Tiny wee Who-hands,
And wee furry Who-paws,
(And of course that most certainly
includes, You-Whos and you alls!)

 A lucky girl is this little me-Who,
(Yes indeedy, I know that it’s true!)
Cause no matter what ever be the green Grinch’s  hand,
This little Me-who can always find to clasp 
A nice warm Who-hand!

No matter where Cindy-Lou Who is being an elf ,
she thinks yes she does to her little Who-self,
(as she sits in Who-land )
“It’s a wonderful life
 In fact, it’s quite grand!”

“Fahoo!” I say,
As I prepare Who-pudding to feast. 

“Dahoo!” I say,
As I carve the roast beast.

 ~~

“And the Grinch, with his grinch-feet ice-cold in the snow,
Stood puzzling and puzzling: “How could it be so?
It came without ribbons! It came without tags!
“It came without packages, boxes or bags!”
And he puzzled three hours, `till his puzzler was sore.
Then the Grinch thought of something he hadn’t before!
“Maybe Christmas,” he thought, “doesn’t come from a store.
“Maybe Christmas…perhaps…means a little bit more!”

Welcome Christmas, bring your cheer!
Cheer to all Whos far and near!
Christmas day is in our grasp,
so long as we have hands to clasp!
Christmas day will always be,
just as long as we have we.

Welcome Christmas while we stand,
Heart to heart and hand in hand.”

~Dr. Seuss

Pink.

Who knew such a benign and gentle hue could summon such strong emotions, and could wield such power? Read the rest of this entry »

Once, when Amelia was about three or four years old, she, Colton and I were driving along. The two of them were of course in the back seat and all of the sudden Amelia yells, “Who’s driving the car!?” In the seconds that I was trying to figure out what she meant, Colton chimed in and answered, “Mom is.  The person who has their hands on the big wheel up in front is the one who is driving the car.” Read the rest of this entry »

I am so sick of talking about breast cancer.

In fact, Grandmother Willow and I recently had a fifty minute-ish chat about it as I crawled all over my psyche looking for clues to my blues. This little Suzy Sunshine was très dissatisfied with her last months of little black rain cloud funkity funk and darn it, I told her, I needed to find the source of my gloomy river and fix it pronto. I speculated, as I have during several recent chats that the business of tiptoeing around the mine field that is cancer while writing this blog has had a little something to do with my sad state of affairs. Maybe even a big little something to do with it.

A minefield indeed; a desolate battleground from a long ago war. A place where still, even years later, I must tread carefully as mines are left that have yet to be detonated. Shards of shrapnel remain, ready to slice into my still tender skin as I wander through, and the remains of what was lost still litter the ground creating sometimes massive obstacles to my progress. A land where I occasionally find a bullet in the soil; a tiny yet lethal missile that missed its mark many years ago, which in my hand weighs heavier than I would speculate of its tiny mass, as I mentally gauge the potential it carried as it was fired in my path all those years ago.

I spend most of my days in my professional life seeing and talking about very ugly things; cesspool of human failure things. Over the last 20 or so years in working with abused wee ones, I have learned a little about the cost of caring, the cost of going over and over traumatic events and quite awful things. Compassion fatigue has often been an unwanted traveling companion in my life. It takes a toll on your psyche to care and listen, and it is the high internal price you pay for dealing with highly emotional traumatic events of others over a long period of time. 

Like with the artist formerly known as Prince, PTSD is the reaction formerly known as Battle Fatigue, (the cost of dealing with your own highly emotional traumatic events over a long period of time.) And you know what? Cancer is a long ass battle for sure, its got physical and mental staying power. The endgame (that is really the never-ending game) is that dealing with cancer and thinking about cancer and worrying about cancer is freaking exhausting. Revisiting the war zone that is and was cancer, even years later, is exhausting.

I my friends, have cancer fatigue. Cancer has done wore me out.

Because even after five years, there are still bombs that have yet to detonate and that scares me. Daily, I find a bullet in the soil and pick it up and realize how close it came to taking me down; while that act of holding the bullet in hand is in itself is frightening, more terrifying is the realization that there may still be bullets in the gun.

As I write this blog, I realize that I have been anxiously and cautiously tiptoeing along, carefully calculating each step and holding my breath even as I sleep. I’m feeling physically exhausted and mentally fatigued by the constant mindfulness to cancer, from the perpetual heaviness of the armor I attempt to don as I write, and by the tiny yet constant effort needed in the hunch up of my shoulders as I tread.

Years ago, when I got fired for having chemo brain and then opened my own practice I found, as cliché as it sounds, a gift in it (I mean besides not having to work with really dysfunctional people anymore.) I made my own schedule, and likely worked 100 more hours a week but all the sudden one day I realized that my 20 years of amassed compassion fatigue had virtually disappeared. 

Now, statistics people could find all kinds of confounds in the causal nature of this phenomenon in my life, such as I was so focused on cancer that work ick seemed small next to it, or it was because I had a break from all the yuck during treatment. But because I know me better than anyone knows me, I will tell you my theory. In owning my practice, I can schedule cases as I like. I can review quite ugly photographs when I am ready and I can say no to the task when I am not ready. I can set boundaries about when and where and how I talk about the sometimes very violent/graphic details of sexual and physical abuse. I can set the pace of cases I see, and take breaks as needed (although I find I don’t need as many breaks as I thought I would.)

The compassion fatigue evaporated as the trauma was more in my control.  Work and trauma no longer controlled me; I controlled it. I could control the ebb and flow of kids and cases, and set boundaries about not talking about child abuse in the walls of my house or on weekends or at cocktail parties for that matter (and not look like a bad/rude/chemo brain employee for doing so.)

When I first got sick, my oh so wonderful Pop and bestest friend MJ called me at least once, if not twice, if not three times a day through diagnosis and in those early weeks of the crazy firehose of test results and treatment plans. Cancer was coming at me from all angles, as you all know it does when diagnosis is fresh, and tests and results are being done, and war strategy is being made. I talked cancer, and ate cancer, and I slept cancer, and like poor Jan Brady lamented with sister Marcia, “Cancer Cancer Cancer,” was all I heard.

One day I just got to where I wanted to talk about something else, anything else, but cancer. Heck, discussing toenail fungus or dead pets would have been infinitely better than talking about cancer at that point. I had to set the limit and say, “Look, I want to take a week off of talking about cancer okay?  Let’s take a break and talk about something else, anything else for a while when you call.” And because they are good people they did just that, and it helped. A lot.

The moral of the story here is that sometimes you just have to take control and set a boundary with cancer, even after five years. Sometimes, you have to place a moratorium on cancerspeak, and that goes for you, the people around you and for that neurotic little voice in your head.

One of my girlfriends told me that right after she was diagnosed and just before chemo started, she and her 12-year-old daughter (with her onc’s blessing) took a long before cancer came a knockin’ planned trip to Greece. My girlfriend really has the coolest kid; I adore that little cutie pie for her effervescent and eccentric grooviness. Don’t you know that girl took a piece of paper and wrote “CANCER” on it, put it in a box and placed it on the mantle in the house. As they left for the airport, this cool kid was pulling the front door shut and she turned back and said to the box, “Cancer, you are too heavy to carry all over Greece. We know you will be here when we get back and we will be ready for you.”

After five years, it is sometimes still all about cancer. Some months it’s worse than others (if you get my potentially ungrateful sounding drift.) So for the rest of this week, I am declaring a moratorium on cancer. I am instead painting my toenails a delightful shade of robin’s egg blue and with my sweet daughter, I am boarding a plane to Disneyworld.

And with that I will say, “Cancer, you are too heavy to carry all over Disneyworld…even in an elephant that can fly.”

Look out! Look out!
Pink elephants on parade
Here they come!
Hippety hoppety
They’re here and there
Pink elephants everywhere

Look out! Look out!
They’re walking around the bed
On their head
Clippety cloppety
Arrayed in braid
Pink elephants on parade

What’ll I do?
What’ll I do?
What an unusual view

I can stand the sight of worms
And look at microscopic germs
But technicolor pachyderms is really too much for me

I am not the type to faint
When things are odd or things are quaint
But seeing things you know that ain’t, can certainly give you an awful fright

What a sight!
Chase ‘em away! Chase ‘em away!
I’m afraid, need your aid
Pink elephants on parade
Pink elephants…
Pink elephants…
Pink elephants…

Pink Elephants on Parade~ Disney’s Dumbo

 

 

I don’t want to talk about 9/11. Not here, not now. Sometimes intense emotional experiences are so private, so personal, and when people around us launch into their own personal narrative of how it unfolded for them, it flavors it for us. And that is not what I want to do. It is not fair to you. Read the rest of this entry »

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